I had not heard of it before either. They also call it Giant Cell Arteritis. The doctor thinks that is what I had and I had most of the symptoms (jaw problems but not bulging veins in my temples) but I did not go to a specialist or have an MRI or biopsy. The doctor put me on a high dose of steroids and the next blood test was back to normal. The headaches stopped after 5 weeks, on their own, before I started the steroids, which I think is a good sign. They have not returned. I am tapering off the steroids now. I am still recovering - very tired, low energy most days, some insomnia from the steroids. I’m also seeing alternative health practitioners and taking some supplements. Once I get down to a low dose of steroids I think I will improve, which will be in a few weeks. Meanwhile Valerie sent me a book about hiking in Italy, in the Cilento where we were a few years ago, so I can read about hiking.